So I’ve been thinking a lot about ALS lately. In fact I believe we all have. How could we not? Social media has been inundated with the#ALSicebucketchallenge (for which I have recently been nominated). This is my 2 cents on the movement and why I’m changing things up.
Now, I’ve never known anyone to have an illness quite as severe as ALS, and I will admit that prior to the events of the past two weeks, I knew little about the subject. In spite of some minor googling and a few spot articles, I would consider my knowledge far from whole. The only thing that I am certain of is that I do not truly understand the disease, and with any luck I never will. All I can do, all anyone can do is try to consider it, if only for a brief moment. Consider how it must feel to be trapped in your own body while the worl looks on with little understanding. That is how I interpret this challenge and that is why I am writing this.
What a horror it would be. A hungry monster of a disease that slowly eats you up. It makes the every day functions of life insurmountable tasks, lest the kindness of others interjects. What a terror to learn that your own body would bit by bit be taken away from your control. It brings me to tears to imagine such strife and perhaps more so to consider how caretakers feel every day that their loved ones lose a bit more of their freedom. Though love is a very powerful feeling that can carry one through such hardships, my heart still aches terribly for that struggle.
I sit here now and feel a pain in my foot, my toes twitch now and then, I take easy sips from my water glass as I tap away on my phone. I’m grateful for all of these things, now more than ever. So thank you, though I did not do the challenge as requested, this has opened my eyes and helped me to see the troubles of others in a newly empathetic light.
We all have our own ways of processing the lives of others. This is mine. please understand it as well meaning.